''If I can do it, then so can you!''

Jed Kagan

Let me introduce myself

I am not sure if you know who I am...so let me introduce myself. My name is Shana Kagan and my son Jed, who is now 12 had CRPS when he...

Our Direction

I feel that these CRPS kids need a voice and us CRPS mothers need to be heard, because I feel that we are the only ones that actually...

Rare Diamond Project Awards

Jedi Tedi has been nominated for Rare Diamond Project Awards. To find out more about what they do, visit their website at...

Our CRPS warriors worldwide

Does your child or teen have CRPS? " About a quarter of children with amplified pain have CRPS. It can occur in more than one body area....

Jedi Tedi's Red Carpet Event

On Sunday the 6th May, Jedi Tedi hosted our first Red Carpet Event at the V&A Waterfront where we booked out the whole movie cinema and...

An interesting read

I found this article while surfing the net and found it an interesting read. I read that they also advocate using anesthetics if the...

The truth about CRPS

Today I spoke to a friend of mine whom I met when Jed was diagnosed. She knows a lot about CRPS. She mentioned that a family member is to...

Words from Shana, Jed's mother

Stress is no good for CRPS as it is the nerves that determine the pain message to the brain and if they are aggravated then so too is the...

One day in the life of CRPS

One day when Jed was experiencing "full blown" CRPS, we thought to make him feel better we will take him out for the day. We helped him...

Words from Shana

There is nothing that works better than that solid determination to be well and walking again Not all the kids are able to do it on their...