October 2, 2019

In the many times I have spoken to moms with kids affected by this very strange and insane disease I find it strange how difficult it is for us to go beyond living without the pain.  It is so difficult to let it go, to give it up ...it defines us as people, as families...

October 2, 2019

My name is Jed Kagan and I am 13 years old. In 2016, after sitting down, I tried to stand up and screamed in agonizing pain and from that day, my life changed forever. My pain increased daily and many tests were done with no conclusion. After 5 weeks of constant pain,...

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Jedi Tedi

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