''If I can do it, then so can you!''

Jed Kagan

 

October 2, 2019

My name is Jed Kagan and I am 13 years old. In 2016, after sitting down, I tried to stand up and screamed in agonizing pain and from that day, my life changed forever. My pain increased daily and many tests were done with no conclusion. After 5 weeks of constant pain,...

October 25, 2018

Jed who was 10...is now 12..Sat in a chair...and then just could not get up...no pressure on his leg for months...no diagnosis on any tests...all normal...we went to this 80 year old pediatrician who had heard of the disease ...called it Sudeck...which is CRPS original...

August 22, 2018

"Dear Jedi Tedi

Shana and Jed, you have done such amazing work with Jedi Tedi and with raising awareness for Red Cross War Memorial Children’s hospital Pain unit.

We are continuously stopped by our medical professors and other disciplines all saying “well done, did you s...

August 6, 2018

I am not sure if you know who I am...so let me introduce myself. My name is Shana Kagan and my son Jed, who is now 12 had CRPS when he was 10. He was admitted to Red Cross Children's Hospital for treatment and in a few months following his inpatient Ketamine infusions...

July 30, 2018

I feel that these CRPS kids need a voice and us CRPS mothers need to be heard, because I feel that we are the only ones that actually know what our children went through and what it felt like and the absolute horror of the unknown. Lucky we were that we were directed t...

May 9, 2018

On Sunday the 6th May, Jedi Tedi hosted our first Red Carpet Event at the V&A Waterfront where we booked out the whole movie cinema and watched “A Wrinkle In Time”. WOW! What an experience it was. Not only was the movie spectacular, we had all the young CRPS warriors i...

May 4, 2018

I found this article while surfing the net and found it an interesting read. I read that they also advocate using anesthetics if the child is in pain, just as The Red Cross Children's Hospital does.

Follow the link and get in touch with your thoughts and opinions at inf...

May 2, 2018

Today I spoke to a friend of mine whom I met when Jed was diagnosed. She knows a lot about CRPS.

She mentioned that a family member is to have an operation in a Cape Town hospital and they are covered by one of the top medical aids in the country.

They received their adm...

April 25, 2018

Stress is no good for CRPS as it is the nerves that determine the pain message to the brain and if they are aggravated then so too is the pain level. We used to give Jed rescue remedy, it's a herbal remedy taken by kids in stressful situations to help them calm, it hel...

April 16, 2018

One day when Jed was experiencing "full blown" CRPS, we thought to make him feel better we will take him out for the day. We helped him to the car, all cushioned and protected and comfortable. We landed up at a beautiful place, which had a restaurant and peaceful garde...

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