LET IT GO
In the many times I have spoken to moms with kids affected by this very strange and insane disease I find it strange how difficult it is for us to go beyond living without the pain. It is so difficult to let it go, to give it up ...it defines us as people, as families, it may make us feel important, or maybe it takes hold of us and it wont let us go. I have to admit that when they told me at the hospital pain clinic that Jed was not chronic anymore, I so remember feeling sho