Our story in short
Jed who was 10...is now 12..Sat in a chair...and then just could not get up...no pressure on his leg for months...no diagnosis on any tests...all normal...we went to this 80 year old pediatrician who had heard of the disease ...called it Sudeck...which is CRPS original name and we fought to find someone who could help Jed...we searched worldwide. This doc had never seen it before but for some unknown reason he knew that kids have a good prognosis...so we kept fighting while J