Jed Kagan

I was not going to post about this as it is a very difficult time for our family but I have decided to post because knowledge is power and if Heathers story can help empower another family or person then that will be a good thing. Heather was recently diagnosed with a rare painful condition of the autonomic nervous system known as CRPS/RSD (type 2). This is an extremely painful debilitating condition that has been rated the most painful condition known to modern medicine and

"Dear Jedi Tedi Shana and Jed, you have done such amazing work with Jedi Tedi and with raising awareness for Red Cross War Memorial Children’s hospital Pain unit. We are continuously stopped by our medical professors and other disciplines all saying “well done, did you see the article in the newspaper” or and “you were on the radio, do you know, did you hear?” Thank you! We never expected to be placed on a national platform in the manner you have achieved. We acknowledge you

I am not sure if you know who I am...so let me introduce myself. My name is Shana Kagan and my son Jed, who is now 12 had CRPS when he was 10. He was admitted to Red Cross Children's Hospital for treatment and in a few months following his inpatient Ketamine infusions and months of special physio, he was able to walk again and now is CRPS 'pain free' and back to his old self. At Jedi Tedi, we are working directly with our pain clinic to help them improve their knowledge and