Jed Kagan

Stress is no good for CRPS as it is the nerves that determine the pain message to the brain and if they are aggravated then so too is the pain level. We used to give Jed rescue remedy, it's a herbal remedy taken by kids in stressful situations to help them calm, it helped Jed and even helped him sleep. Please remember that CRPS does have a good prognosis with children as is proven medically, so please don't give up fighting for recuperation. Unfortunately, the hospitals and d

One day when Jed was experiencing "full blown" CRPS, we thought to make him feel better we will take him out for the day. We helped him to the car, all cushioned and protected and comfortable. We landed up at a beautiful place, which had a restaurant and peaceful gardens. When we got there, Jed saw the children playing ball in the park. It was at that moment that he started crying and he never stopped the rest of the day. He had convinced himself that he would never play or w

There is nothing that works better than that solid determination to be well and walking again Not all the kids are able to do it on their own (not sure if it is a certain maturity level) but I have seen that older kids manage better without being admitted to hospital than the very young ones who struggle even in hospital more than the slightly older ones in hospital. They are all on the medication now. The older children and some of the others can somehow focus and force them

Jed never went to school for a whole three months before he was admitted into hospital but unfortunately it can only be you who can tell them what CRPS is and tell them how these children suffer through this disease with no help from anyone. Look at our jeditedi.net.website to get some knowledge of how everyone in the family suffers, not just the sufferer. Parent’s of these kids know the extent of the pain. Sometimes it's a hard fight, but we have to do it.. And we must. We

This is a story about a boy named Jed, who was in great pain he could not get out of bed. At the age of 2 he was diagnosed with CRPS, which has caused him sadness and a great deal of stress. CRPS is complex regional pain syndrome which affects arms, legs, hands, or feet- It is extremely painful and difficult to treat. Luckily he recovered and happy we were, but what he did not realize is that it’s a disease that does reoccur. ​ Jed is now 10 years old, in 2016 the pain return