''If I can do it, then so can you!''

Jed Kagan

Jamie and Joy

Yesterday we fetched Jamie in Manenberg. Jamie, is an 11 year old neurological pain sufferer, he is a very mature and insightful young...

LET IT GO

In the many times I have spoken to moms with kids affected by this very strange and insane disease I find it strange how difficult it is...

My story

My name is Jed Kagan and I am 13 years old. In 2016, after sitting down, I tried to stand up and screamed in agonizing pain and from that...

Don't wait for doctors

Our pain clinic go full on to change the mind set of the fear of CRPS and most of the kids may get 1 flare...a few struggle a bit after...

Our CRPS frustration

I am totally devastated and now even more passionate to carry on with my initiative for CRPS awareness in children. Our Jedi Tedi...

Our story in short

Jed who was 10...is now 12..Sat in a chair...and then just could not get up...no pressure on his leg for months...no diagnosis on any...

Jedi Tedi news

Hello, we thought you may like to have an update on our LATEST Jedi Tedi happenings. Jed and I attended 3 schools in Johannesburg two...

A letter from a supermom, Hayleigh.

I was not going to post about this as it is a very difficult time for our family but I have decided to post because knowledge is power...

A letter from the pain clinic

"Dear Jedi Tedi Shana and Jed, you have done such amazing work with Jedi Tedi and with raising awareness for Red Cross War Memorial...

Let me introduce myself

I am not sure if you know who I am...so let me introduce myself. My name is Shana Kagan and my son Jed, who is now 12 had CRPS when he...